Caregiving at Home

 

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1

Thinking About Home Care

2

Communication

3

Caring For Yourself

4

Setting Up Your Home, Safety and Body Mechanics

5

Preventing Infection in the Home

6

Normal and Abnormal Signs of Aging

7

Meeting Special Needs and Conditions

8

Death, Dying and Hospice Care

9

Providing Personal Care

10

Transfers and Ambulation

11

Basic Healthcare Skills

12

Healthy Eating and Hydration

13

Emergency Care

14

Medications

1

 

The Administration on Aging website educates older people and caregivers about benefits and services that can help them.

National Council for Aging Care
Washington, DC 20201
202-619-0724
www.aginginplace.org


The American Association of Retired Persons (AARP) website has information, education, advocacy, and community information for people over 50.

American Association of Retired Persons (AARP)
601 E. Street NW
Washington, DC 20049
888-OUR-AARP (888-687-2277)
www.AARP.org


The Healthy Aging for Older Adults website, sponsored by the National Center for Chronic Disease Prevention and Health Promotion, provides information on a wide range of topics, including the following: health-related behaviors; chronic diseases; infectious diseases; immunizations for adults; and injuries among older adults.

National Center for Chronic Disease Prevention and Health Promotion: Healthy Aging for Older Adults
1600 Clifton Road
Atlanta, GA 30333
404-639-3311
www.cdc.gov/aging


NOTE: In the United States each state regulates healthcare facilities differently. In your state, private home health agencies may not be formally regulated. The same holds true for assisted living homes and adult foster homes. Quality can vary widely. We direct you to local resources because they are the BEST source of up-to-date information in your community. Make contacting them a priority.

 

2

 

The American Foundation for the Blind is dedicated to promoting employment, independent living, literacy and technology for those who are visually impaired. American Foundation for the Blind

11 Penn Plaza, Suite 300
New York, NY 10001
Tel: 212-502-7600
Fax: 212-502-7777
www.afb.org


The National Association for the Deaf provides information and support for people who are hard of hearing and advocates for improved access.

National Association for the Deaf
814 Thayer Avenue
Silver Spring, MD 20910-4500
TTY: 301-587-1789
Voice: 301-587-1788
Fax: 301-587-1791
www.nad.org


The National Institute on Aging provides free information on choosing a doctor and communicating with medical professionals.

National Institute on Aging
Talking to Your Doctor: A Guide for Older People
NIA Information Center
PO Box 8057
Gaithersburg, MD 20898-8057
www.niapublications.org


The National Family Caregivers Association seeks to support, educate and empower family caregivers. It also strives to improve quality of life for caregiving families. The association publishes a newsletter (free to caregivers) and it's site has links to tips and guides on topics of interest to caregivers, such as communicating with healthcare professionals and care management techniques.

National Family Caregivers Association (NFCA)
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Tel: 301-942-6430
Toll Free: 800-896-3650
Fax: 301-942-2302
www.thefamilycaregiver.org

 

3

 

Caregiver.com is an upbeat online magazine for caregivers, with discussion groups and links to regional resources.

Caregiver.com
6365 Taft Street Suite 3003
Hollywood, FL 33024
Tel: 954-893-0550
Toll-free: 800-829-2734
www.caregiver911.com


SATH provides vacation assistance for those with disabilities and advocates for providing better accessibility by the travel and tourism industries.

Society for Accessible Travel and Hospitals (SATH)
347 Fifth Avenue, Suite 610
New York, NY 10016
Tel: 212-447-7284
Fax: 212-725-8253
E-mail: sathtravel@aol.com
www.sath.org

 

4

 

The Center for Healthy Aging has launched a new fall prevention action plan. The site contains statistics, information on fall prevention, and tips for modifying the home to prevent falls.

Center for Healthy Aging
300 D Street, SW, Suite 801
Washington, DC 20024
Tel: 202-479-1200
Fax: 202-479-0735
TDD: 202-479-6674
www.healthyagingprograms.org


This site contains information on avoiding back injury and on conditions that can cause back pain, as well as treatment for these conditions.

SpineUniverse.com
1737 S. Naperville Road, Suite 203
Wheaton, IL 60187
www.spineuniverse.com


This website from the University of Southern California contains articles about home modification and links concerning home modification and other aging issues.

National Resource Center on Supportive Housing and Home Modification

Andrus Gerontology Center, University of Southern California
3715 McClintock Avenue
Los Angeles, CA 90089-0191
Tel: 213-740-1364
Fax: 213-740-7069
Email: homemods@usc.edu
www.homemods.org


This website has a comprehensive section on home modification, including information on where to get help for people who cannot do the modifications themselves. A form for e-mail questions and comments is provided on the website.

CarePathways.com
Tel: 1-877-521-9987
www.carepathways.com


The NAHB Research Center was created by the National Association of Home Builders to facilitate liaisons between builders, government, and industry to advance housing technology and make housing more affordable. The site has a section dedicated to senior housing which contains information about home modification for accessibility and assistive devices for the home. There are also links to checklists for interior and exterior modifications to the home and to an online bookstore.

National Association of Home Builders Research Center (NAHB)
400 Prince George’s Boulevard
Upper Marlboro, MD 20774
Tel: 301-249-4000
Toll-free 800-638-8556
Fax: 301-430-6180
www.nahbrc.org

 

5

 

The CDC’s website has information on a vast number of health topics, including infection control, vaccinations, and individual diseases, such as HIV/AIDS and tuberculosis.

Centers for Disease Control and Prevention (CDC)
1600 Clifton Road
Atlanta, GA 30333
Tel: 800-311-3435
www.cdc.gov


This is a non-profit organization dedicated to preventing HIV infection and improving the lives of those with HIV/AIDS.

AIDS.ORG
7985 Santa Monica Boulevard, #99
West Hollywood, CA 90046
www.aids.org


The World Health Organization (WHO) is an agency developed by the United Nations to address world health concerns. It's site includes information about specific diseases, including HIV/AIDS.

World Health Organization (WHO)
Avenue Appia 20
1211 Geneva 27
Switzerland
Tel: (+ 41 22) 791 21 11
Fax: (+ 41 22) 791 3111
www.who.int


The Gay Men’s Health Crisis is a non-profit organization dedicated to the fight against HIV/AIDS and to the promotion of dignity for gay men and lesbians.

Gay Men’s Health Crisis
The Tisch Building
119 West 24th Street
New York, NY 10011
Tel: 212-367-1000
www.gmhc.org


Hepatitis Foundation International offers resources and support to those living with hepatitis and information about hepatitis prevention.

Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
Tel: 800-891-0707
www.hepfi.org


The American Lung Association provides information about tuberculosis and other lung disorders.

The American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
Tel: 800-LUNGUSA
www.lungusa.org

 

6

 

This site offers general mental health information and information about clinical trials and research being conducted in the field of mental health.

National Institute of Mental Health (NIMH)
Office of Communications
6001 Executive Boulevard, Room 8184, MSC 9663
Bethesda, MD 20892-9663
Tel: 301-443-4513
Toll-free: 866-615-6464
TTY: 301-443-8431
Fax: 301-443-4279
www.nimh.nih.gov


The CDC’s healthy aging site promotes health and quality of life for aging persons, as well as disease prevention. This page also has a link to an alphabetized list of health topics and relevant information.

Centers for Disease Control and Prevention (CDC)
Healthy Aging for Older Adults
E-mail comments or questions to ccdinfo@cdc.gov
www.cdc.gov/aging


This comprehensive site from the U.S. National Library of Medicine and the National Institutes of Health has information on over 700 health topics. There is also a link to information about prescription and over-the-counter medications, a medical encyclopedia, and a dictionary of medical terms.

MedLine Plus
U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
Tel: 888-346-3656
www.medlineplus.gov

 

7

 

The Arthritis Foundation site has information and links to resources for those with arthritis, including a link to find your local chapter. There is a buyer’s guide for products that make tasks easier for people with arthritis, and a link for contacting your congressperson about issues relating to arthritis.

Arthritis Foundation
PO Box 7669
Atlanta, GA 30357-0669
Tel: 800-283-7800
www.arthritis.org


The American Cancer Society site contains information for those who have cancer and their families and friends, as well as support resources for survivors of cancer and tips for prevention and early detection. There is a locator that you can use to find activities and resources in your community.

American Cancer Society
Tel: 800-ACS-2345
www.cancer.org


The United Ostomy Association’s website offers information for people of various age groups who have had diversionary surgery. There is also information about prevention of and screening for colon cancer and updates of relevant medical news.

United Ostomy Association, Inc.
19772 MacArthur Blvd., #200
Irvine, CA 92612-2405
Tel: 800-826-0826
www.uoa.org


The American Diabetes Association’s website includes news and facts about diabetes, including research and prevention. There is information about nutrition, including recipes, and pointers especially for parents and children.

American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Tel: 800-DIABETES (800-342-2383)
www.diabetes.org


SAFE is an international Internet coalition of stroke survivors, their loved ones, and healthcare professionals who work in the field. The site has information about stroke and signs of stroke, as well as links to support resources.

SAFE (Stroke Awareness for Everyone)
8906 E. 96th Street, #311
Fishers, IN 46038
Fax: 317-585-9563
www.strokesafe.org


The Pulmonary Hypertension Association addresses pulmonary hypertension, or continuous high blood pressure in the lungs, which can lead to an enlarged heart. The site contains health information, links to support resources and a special section with insurance information.

Pulmonary Hypertension Association (PHA)
850 Sligo Avenue, Suite 800
Silver Spring, MD 20910
Tel: 800-748-7274
www.phassociation.org


The American Heart Association offers information on heart health and heart diseases and conditions. The site provides a link that allows you to find your local AHA branch.

American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Tel: 800-AHA-USA-1 or 800-242-8721
www.americanheart.org


The National Heart, Lung, and Blood Institute’s website is sponsored by the Department of Health and Human Services and the National Institutes for Health. It contains sections for patients and their families, health care professionals, and researchers. The section for patients is focused on education; there is also a link to a list of clinical trials.

National Heart, Lung, and Blood Institute
PO Box 30105
Bethesda, MD 20824-0105
Tel: 301-592-8573
www.nhlbi.nih.gov


The HeartCenterOnline’s site is focused on providing users with the tools they need to educate themselves and monitor their own health. The site also provides links to information about other health topics, such as cancer, women’s health, and mental health.

HeartCenterOnline (part of HealthCentersOnline)
One South Ocean Boulevard, Suite 201
Boca Raton, FL 33432
Fax: 561-620-9799
www.heartcenteronline.com


The Alzheimer’s Disease Education and Referral Center provides current, comprehensive Alzheimer’s disease (AD) information and resources from the U.S. Government’s National Institute on Aging (NIA).

Alzheimer’s Disease Education and Referral Center (a service of the National Institute on Aging)
ADEAR Center
PO Box 8250
Silver Spring, MD 20907-8250
Tel: 800-438-4380
www.nia.nih.gov/alzheimers


The Alzheimer’s Association provides information about AD as well as articles concerning the latest research in the field. There is also an advocacy link for those who would like to take an active role in fighting Alzheimer’s disease.

Alzheimer’s Association
225 N. Michigan Ave. Fl. 17
Chicago, IL 60601-7633
Tel: 800-272-3900
www.alz.org


The COPD International website provides information for those with COPD and their caregivers, as well as advice for kids and teens. There are tips for coping, links to support resources, both online and offline, and detailed information on the latest drugs being used to treat COPD.

COPD International
131 D.W. Highway #627
Nashua, NH 03060
www.copd-international.com


The American Lung Association’s website contains information about various lung diseases, including cancer and COPD. It provides comprehensive descriptions of treatment options for these diseases, as well as interactive tools to help users better understand their own condition and options. The site has a great deal of support information, including support for those who are trying to quit smoking.

The American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
Tel: 800-LUNGUSA
www.lungusa.org


8

 

The National Hospice and Palliative Care Organization provides information and answers questions about hospice care. There is a database in which you can search for hospice and palliative care organizations in your area.

National Hospice and Palliative Care Organization (NHPCO)
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
Tel: 703-837-1500
Fax: 703-837-1233
www.nhpco.org


The Hospice Foundation of America provides support to those who are dealing with terminal illness, death and the grief and bereavement process, including medical professionals and volunteers. There is a link to a locator service that can help you find hospice care available in your area.

Hospice Foundation of America
Tel: 800-854-3402
www.hospicefoundation.org


The U.S. Living Will Registry provides information about advance directives and links to advance directive forms for each state. Advance directives are documents that allow people to choose what kind of medical care they wish to have in the event they are unable to make those decisions themselves. An advance directive can also designate someone else to make medical decisions for a person if that person is incapacitated. Living Wills and Durable Power of Attorney for Health Care are examples of advance directives.

U.S. Living Will Registry
523 Westfield Avenue
PO Box 2789
Westfield, NJ 07091-2789
Tel: 800-LIV-WILL (800-548-9455)
Fax: 908-654-1919
www.uslivingwillregistry.com


Federal law requires all hospitals to provide information about advance directives to people in their communities, including information about the laws specific to that state.

 

9

 

Abledata, sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR), provides objective reviews of assistive devices and technology. The site does not sell the products it reviews, but provides links to sites where they can be purchased.

ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Tel: 800-227-0216
Fax: 301-608-8958
TT: 301-608-8912
www.abledata.com


Monterey Network of Care is an Internet-based network offering resources to caregivers, consumers and service providers.

Monterey Network of Care
Trilogy Integrated Resources LLC
1101 Fifth Avenue, Suite 250
San Rafael, CA 94901
www.monterey.networkofcare.org


10

 

Abledata, sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR), provides objective reviews of assistive devices and technology. The site does not sell the products it reviews, but provides links to sites where they can be purchased.


ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Tel: 800-227-0216
Fax: 301-608-8958
TT: 301-608-8912
Email: abledata@orcmacro.com
www.abledata.com


11

   

12

 

The USDA offers information about food safety, dietary health, and food labeling and packaging. There is also a list of food recalls and information on food technology. The USDA offers dietary plans for people on a budget and a wealth of information about MyPyramid, which was developed by the USDA.

U.S. Department of Agriculture (USDA)
Food and Nutrition Page
1400 Independence Avenue
S.W. Washington, DC 20250
www.usda.gov


The Nutrition.gov site contains information on healthy eating, nutrition, and obesity prevention.

Nutrition.gov
National Agricultural Library
Food and Nutrition Information Center
Nutrition.gov Staff
10301 Baltimore Avenue
Beltsville, MD 20705-2351
www.nutrition.gov


13

 

The American Red Cross provides disaster relief services, as well as health and safety services. The site offers disaster preparation tips, news of worldwide relief efforts, and links for those wishing to contribute to relief efforts or to give blood.

American Red Cross
American Red Cross National Headquarters
2025 E Street, NW
Washington, DC 20006
Tel: 202-303-4498
Disaster Assistance: 866-GET-INFO (866-438-4636)
www.redcross.org


The American Heart Association offers information on heart health and heart diseases and conditions. The site provides a link that allows you to find your local AHA branch.

American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Tel: 800-AHA-USA-1 or 800-242-8721
www.americanheart.org

 

14

 

The FDA provides the latest information on labeling and packaging requirements for prescription and over-the-counter medications. The website also gives information about medical devices, such as pacemakers and hearing aids. There are also links to report a problem with a product or to comment on proposed FDA regulations.

U.S. Food and Drug Administration
5600 Fishers Lane
Rockville, MD 20857-0001
Tel: 888-INFO-FDA (888-463-6332)
www.fda.gov


The Physician’s Desk Reference is a comprehensive resource for information about prescription and over-the-counter medications, including herbal medicines and nutritional supplements. It is available in libraries, bookstores, and on the web at www.pdrhealth.com.